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kaylight1101
30 December 2008 @ 11:17 am
I always have a bad feeling about these "newer" meds and the companies that make them. 
Even though Risperdal seemed to be helping a little, the weird side effects, though subtle enough, were still there.

For the last few years or so, I have not felt trusting of much of any of these new meds. The Lamictal seems OK
for the last two years. But I feel like I am poisoning myself with that even over time.

I am hoping that since I quit MJ, that eventually I can try and wean off and see what happens. The only time
I have gotten severely depressed so far, is around that time of the month.

Other than that, I am having some low grade moods interspersed with more hyper and anxious moods
that exercise is helping finally. The worst of it is the high anxious moods that MJ was keeping down -
just a little too down. I have had to use Clonopin a little more than I would like, but at least i know that
is an old drug and has never been black labeled. It is a stand-by for me until I can get it more under
control on my own.

I am just no longer willing to be put on these newer drugs with all their weird side effects and potential serious
long-term health problems (such as diabetes and liver damage). I can tell when something is just not right
about a drug by the way it feels. As Bob Dylan sings, "When something's not right, it's wrong."

via Mind Hacks by vaughan on 12/29/08

The January edition of the New York Review of Books has an excellent article on the pharmaceutical industry and the corruption of medical ethics that summarises the recent revelations of fraud, undisclosed payments, data burying and off-label promotion that pervade the industry.

The piece is by Marcia Angell, who spent 20 years as editor of the New England Journal of Medicine and is now a senior lecturer in Harvard Medical School.

Rather disappointingly, although not particularly surprisingly, is the fact that psychiatry holds pride of place in the drug company corruption and unethical dealings stakes, with the large part of the article focusing on the marketing of major psychiatric drugs.

Marketing in the pharmaceutical industry not only relates to advertising and payments to doctors - in the form of money or gifts - but also to the published research which is often specifically designed to show the drug in the best possible light, or is deliberately buried if it doesn't.

One person who has been instrumental in uncovering some of the most recent revelations is US Senator Charles Grassley who has spent the last year digging into payments to doctors and has uncovered large undisclosed sums paid to the biggest names in psychiatry.

The New York Review of Books article is a fantastic potted guide to the whole sordid business and is well worth a read if you want an update on the latest techniques used to market psychiatric drugs.


Link to NYRB piece 'Drug Companies & Doctors: A Story of Corruption'.




 
 
kaylight1101
26 November 2008 @ 03:16 am
I'm so pissed off right now. Since I started taking Risperdal about five days ago, I have developed this increasingly bad pounding headache. I am up this late trying to get rid of the last of a serious migraine that is finally dimming with excedrine migraine pills. But it still hurts.

So sure enough, i find a site with a complete list of side effects and get to find out that they put ASPARTAME in the coating of this medication!!!  

WTF!!!! 

I have an extreme sensitivity to that in that I get migraines and can't see straight.

What i am most pissed about is that at any grocery store, all you have to do is pick up a food product and if it has Nutrasweet and/or Aspartame in it, they have to put that as a warning or consideration on the label.

Did I see anywhere on my bottle for this med that it contains ASPARTAME? 

Not a mention.

That is just out and out wrong. Even these vitamins I bought at GNC that made me want to puke said they had Phenylalanine in the coating - aka Aspartame.

I am seriously going to write to both the makers of this med and the FDA. This is just bullshit.

There are people who can get seriously fucking ill from Aspartame. For years I drank diet coke and one day I realized it was making me sick as a dog and I just stopped. I can't even touch it now without getting a migraine that eventually crescendos into vomitting for hours. 

But I am heading that off now. Just a minute ago, I left a message for my shrink, letting him know I am going off of this and that if anyone else happens to get a migraine they can't describe, he might want to find out if they have a problem with aspartame. I am not mad at him, but in a way, I feel these doctors should know little things like this. When I told him I had a serious headache building, he just kind of shurgged like he didn't think it might be from the med.

Once I figured this one out, I could tell it was that old Aspartame flavor of a sick headache again.

Well, I guess I will grapple with my depression on just the bare bones Lamictal again and the light box and meditation and excerise and be more consistent with it all and see where it goes.


 



 
 
kaylight1101
02 October 2008 @ 03:28 pm
the full impact of this word has fallen on me today. it's brought in new awareness
that there is definelty more to be gotten out of my thinking processes and obsessions.

other than that, i am finally watching this old "love and rockets" music video VHS tape and it's awesome!

i am noticing some great samples too.
 
 
kaylight1101
11 August 2008 @ 11:01 am
I had a really good laugh last night watching a program on Animal Planet called, "Eaten Alive," about the bizarre parasites that
people pick up - usually from other countries.

The re-enactments just had me laughing my ass off. They had a guy burping pretty loud and going into the jungle to puke, etc.

Then they had a scene where a man goes to the toilet and something comes out of his rear end. They didn't show what followed, but
they did say his wife had to help him pull out this huge tapeworm hand over hand. They finally had to cut it since the head was stuck in there.

This sent both my father and my half-brother running out of the room while my step-mother and I just laughed.

It was a good thing they did because the last segment they showed as a guy peeing in the river. There is apparently some kind of
fish looking parasite that is able to follow a stream of urea. He didn't even see it and it lodged in his penis and grew to be six inches by the time they got it out. Why this guy couldn't pee somewhere else instead of the river is beyond me.

Another lady who's a massage therapist, was giving a massage when she felt something kind of wet in her underwear. The re-enactment of that was her getting on the toilet (tastefully enough done but still funny) and this thing falling out on the floor.

I woke up this morning still giggling about the burping re-enactment. I am sure they gave whomever some really carbonated drink or a fast drink of beer.

Since my half-brother just came back from Napal, my step-mother stared filling him on the gory details (while he was eating). He started yelling at her to shut up and then went up to his room and slammed the door. But he wasn't really pissed or anything.

But geeze, some of these parasites can cause stuff like elephantitis in the legs and can lodge themselve and eat into your brain. Sometimes they don't really show up until years later.

here's a video clip of the woman who had parasites in her brain.

http://sciencevideos.wordpress.com/2007/09/22/eaten-alive-parasites/
 
 
kaylight1101
23 July 2008 @ 08:25 am
This is a Pioneer DVJ system. I would love to be a DVJ, but these start at around $2500 + ( I hope they come down over time.)

This is hilarious. It made my day already. I'm still laughing

 
 
kaylight1101
22 July 2008 @ 06:55 pm
test  
nothing i am positing is showing up anymore. 
 
 
kaylight1101
20 June 2008 @ 02:46 am
to still love and care about someone but to have to let them go or at least give them a wide bearth - to hold conflicting feelings about someone and still endeavor to be kind and compassionate.

because walking away is still moving forward.
 
 
kaylight1101
19 June 2008 @ 05:11 pm
My stress level got to high and getting in a relationship seemed to start setting off more mixed episodes. When the self-harm and the drinking on top of a bezo and taking pain medication too, not to mention psych meds....

I did what I had to do and since I have watched "The Bridge" for the third time in a row in the last day and a half, I really started picking up on what the father had to say of jump survivor, Kevin Hines.

The father became well aware that his son had a serious bipolar disorder after this and had to be hospitalized several times, trying to get his medication right. And he said it is a combination of diet, consistency, and proper medication management. He said as long as Kevin stays within these "brackets", it's all right. However, he has had to learn this the hard way a few times. It's get up and eat breakfast, take meds at 9, bed at ten, etc..

But fuck it, that's no way to live on some level, but the father had the good sense to say that that is a very difficult way to live for a 24 year-old male in this society.

I think I need to start trying to find some brackets to stay within and it is probably going to require me to definitely stay away from any party scene or any potential substance-abusing dating partner. that is all I have dated in years for 90% of it.
 
 
kaylight1101
19 June 2008 @ 11:14 am
board and care home = bored and who cares? home

I also just thought of how I used to refer to Leisure World, the retirement community in which my grandparents lived about 20 years ago. I used to tell my friends I was going to Seizure World to visit the grandparents,
 
 
kaylight1101
19 June 2008 @ 09:30 am
I never sent my father a father's day gift or my step-mother a mother's day gift. Mostly because I am really broke lately.

I re-rented "The Bridge" (about people jumping from the Golden Gate Bridge) from netflix and have watched it a few times now ( I don't have cable or other reception) to the point where I am critiquing whether or not they used the 3/4 rule very well in filming interviews or if it doesn't matter on close up shots.

I also want to find out how they even found some of these people to interview, but I guess they might have had some way of finding out the identities of the dead.

Anyway, when my folks were here visiting, my step-mother and i were talking about an old friend of mine, whom she knew too, who had shot himself and then about another who did the suicide by cop thing.

Then she said, "Suicide is such a selfish act," to which I immediately replied, "Not really. A lot of people are mentally ill when they commit suicide and some are just out of hope and at the end of their rope for other reasons - medical, financial...."

So this morning, I got this idea that I am going to buy and send this movie to the two of them. I don't think this is a totally ludicrous idea and I don't think it should upset them too much, but I feel the film educates people on mental illness and promotes empathy and compassion as opposed to anger and self-righteous indignation.

"Selfish" is a weird term to use, I feel. People commit all kinds of selfish acts all the time. Maybe it is just a matter of scale. My step-mother has been selfish plenty of times in her life.

I hope this does not upset them since I tried to commit suicide twice when I was younger, but I think they will find it interesting.
 
 
kaylight1101
22 May 2008 @ 12:12 pm
this is the most amazing thing I've seen in a long time:

http://www.kcra.com/video/16354021/index.html
 
 
kaylight1101
17 May 2008 @ 12:29 pm
I remember this guy in California who used to remind me on regular basis to just take a deep breath and say, "Fuck it."

I must remember that. It honestly has a certain effect.
Tags:
 
 
kaylight1101
29 April 2008 @ 04:45 pm
"The grave's a fine and private place,
But none I think do there embrace."

--- "To His Coy Mistress" by Andrew Marvel

I remembered this line today from a 17th century English poem I read in college.  I think the poem's a riot and seems mostly about sexual repression and frustration. The things people had to do to get laid back then... (but the context seems a good reminder about love in general)
 
 
kaylight1101
 I have been doing some research on Borderline Personality Disorder.  I was diagnosed with a "variant" of BPD as it has been somehow decided that I do not have all the symptoms. However, I was diagnosed with full-blown BPD at age 20 when I had a horrible eating disorder and tried to kill myself. I now fully realize why some therapists in the hospitals I ended up in (and in the ER a couple of times) were really unkind to me.

Every time I happened to see on a piece of paper that my diagnosis was BPD, I also noticed that clinicians felt the need to be pretty heavy-handed with me, which is exactly the opposite of what I needed. This attitude would often start the minute I walked into their office. They assumed that I was going to start manipulating them right off the bat. This diagnosis has garnered such a bad reputation that some therapists, as a rule, will only take on so many borderline patients without first giving them the benefit of the doubt.

The truth, as I knew it, was that I was just incredibly sad and disconnected. I remember one therapist in particular who had a cold look and mean tone telling me that I had tried to commit suicide to get back at my parents, that that was the "ultimate fuck you."

Maybe I was unconsciously doing that,  but mostly I was really miserable and severely depressed. I felt that there was no getting out of my eating disorder, though I survived it for another 10 years before I beat it. If I did anything for attention, trying to kill myself was really a way of trying to find a release from the stress I was under all the time. If it was a cry for help or a rescuer, I must have really needed a hand at that point.

After getting re-diagnosed again a few years ago, I remember thinking  that since it is a mostly a female problem, that BPD might be somewhat of a feminist issue or could be looked at as even a pejorative label. It almost seems like somewhat of an extension of the "mad woman in the attic" story, fodder for feminist literary theory based on a character in the Charlotte Bronte novel, "Jane Eyre." 

I think there are some valid diagnostic criteria for the symptoms, but I no longer think the  BPD label is very helpful since it inspires fear in the patient and his or her community.

I only seem to notice the related severity of symptoms when I get into an intimate relationship or get around my mother who has mood swings  and can become verbally abusive and irrational. Sometimes there are other triggers and I need a lot of time alone. I have a hard time figuring out if certain people or groups of people are "safe" for me, but feel I have come by that honestly and that it often-times just makes good common sense.

On the other hand, my most recent disassociated traumatic episode, has helped me in that I am starting to look at some of what I am going through in the context of BPD - especially the thinking styles - and realize that the diagnosis can be a helpful way of gaining self-knowledge in some areas - but just for the time being. For example, I realize that I do that "splitting" thing over situations and other people as well in regular day to day situations. Some of this is due entirely to my fluctuating mood that causes changes in my cognitive approaches to things.

I remember being really pissed off at this mental health center I went to in Akron when the first therapist I saw there had me sign some papers for a treatment plan.  Right there in front of me was a whole list of diagnoses assigned to me - narcissistic, dependent, avoidant, and borderline personality disorders. She had only met with me once before the treatment plan signing! I have read that it is not uncommon for these people to unscrupulously diagnose other personality disorders with BPD.

I was annoyed even further when on two other occasions, she told me that she didn't agree that BPD might be part of a mood disorder and that it was entirely learned.  On another occasion, she felt the need to point out to me that many psychologists do not even believe that Fibromyalgia even exists, thus covertly stating her opinion (given the context) about one of my conditions. Yes, it occurs more often in certain personality types and those with mood disorders, but again, the research is pointing to a sensitive biochemistry that more or less throws off the stability of a fragile nervous system and causes or exacerbates the condition.

I was also in this therapist's coping skills/DBT therapy group and I hated the way she dealt with patients. She got way too heavy handed with a woman who had been cutting herself with a potato peeler.  It seemed unprofessional to come down that hard on her in a group setting.

The next time I tried to attend her group, after I had fired her and got a much more reasonable therapist who was her boss, she was telling a patient, who probably had a bad case of tardive dyskenisia (from her description of how it started after being on a  anti-psychotic), that she had total control of her chronic torso undulations and facial movements.  She told her that if she just tried to stop doing that for five seconds, it would add up eventually to longer. She was kind of heavy-handed with her as well, and not very bright about it, being that she is not a medical doctor and the woman had yet to be properly evaluated.

Once again, I noted how clinicians often treat those labeled with BPD as pariahs. The underlying message from some of them is, "You learned your way into this misbehavior, now you better work hard as hell to get yourself out. And besides,  you're a pain in the ass to everyone around you."

I am glad I've been doing my research. I think that I would rather talk to someone about the fact that I have some kind of childhood PTSD that developed along with my mood disorder, rather than to admit to a diagnosis of BPD.  A search on BPD and PTSD reveals that many clinicians believe that BPD is not much different than, or occurs along with complex post-traumatic stress disorder. Maybe it is time to get rid of the whole BPD label that seems mostly to blame women as having personality flaws, as women are historically put down for exhibiting or expressing dark feminine energy or experssing certain emotions.

While it seems rather "uncool" or out of vogue these days to talk about the problems of one's childhood, I would have no other way of explaining what was going on with me all last week, that I became emotionally dysregulated in a state of hyperarousal or "fight or flight," and that I became really sensitive to rejection, even if that was not the other person's intent in the end. So most of the BPD shoe does fit, but I still retain my right to resist that label and to have a choice in how I define my own humanity.

I really liked this article that hypothesizes that  BPD is a diagnosis that might have garnered more attention over the last couple of decades as a separate issue from mood disorders and PTSD, simply because the psychiatric community just needed more funding to do more research on other affective disorders. As well, the author talks about the enormous section in bookstores on BPD and the idea that maybe the publication drives the diagnosis more than the other way around. 
 
 
kaylight1101
20 March 2008 @ 12:24 pm
For some reason or another, I got interested in cults yesterday. It was after reading the news piece on the investigation of the Manson Family's old Barker ranch for more murder victims.

After that, I started thinking about Alcoholics Anonymous and then The Church Universal Triumphant which was headquartered not too far from Bozeman, MT, where I lived at the time.

It was the early 1990's and Elizabeth Clare Prophet, the leader of the CUT Church, was making a lot of local news as well as bigger news when she predicted a nuclear bomb would go off at some specific date in '93.

Most of her followers donated large sums of money (and ended up bankrupt in a lot of cases) to the building of these huge underground bomb shelters. When the bomb did not go off, she said it was because their prayers had averted the attack.

Many people left CUT after that and many wrote some pretty inflammatory letters to the Bozeman Chronicle. The Chronicle was always writing anti-CUT articles anyway.

One of the art rock bands in Bozeman called themselves The B.U.T band or Band Universal Triumphant for the fun of it.

By the late 1990's Elizabeth developed Alzheimer's and became totally inactive in her church. She is currently in the advanced stages of Alzheimer's and lives in Bozeman.

I was surprised to find out that CUT aka The Summit Lighthouse had been well established for many years and had moved many times around the country and is a relatively widely popular religion/cult in many other countries.

What is interesting about Elizabeth is that she suppposedly had a past life vision at age 5 and demanded that her parents find her a church. By age nine she settled on Christian Science partly because she believed it might heal her medical condition. She had absence siezures as a child that grew into tonic-clonic seizures as she got older.

I find that history a bit interesting after listening to some of the samples of her sermons I found online. A few different electronic music bands have sampled her.  These are so bizarre sounding that I think if I ever get into any kind of electronic music production (which I might), I would have to buy this CD,  "Sounds of American Doomsday Cults"

I like the line from the fist link, "Rock is the rhythm of death and hell and without that rhythm that death and hell cease to exist."

http://www.aquariusrecords.org/audio/doomsdaycultcall.m3u


http://www.aquariusrecords.org/audio/doomsdaycultrock.m3u
 
 
kaylight1101
04 March 2008 @ 11:06 pm
I looked it up to find it was Eleanor Roosevelt who said it:

“You must do the thing you think you cannot do”


For me, this means going beyond my concentric comfort zone and putting myself out there socially and artistically. That is the hardest thing for me to do at times, because this often means I will be doing this alone. Or so I think.

But when you step out of your comfort zone, you expand your world.

Eleanor also said this:

The purpose of life, after all, is to live it, to taste experience to the utmost, to reach out eagerly and without fear for newer and richer experiences.
 
 
kaylight1101
The more I wake up to old world delusions that persist into the 21st Century, the more I can't help but be amused. I used to wonder, how in the world could the ancients figure out all the ins and outs of astrology and exactly what it meant to be born in a certain place at a certain time when the planets were lined up a certain way.

I'm a Leo, but from what they describe, I'm not like that at all when it comes down to it. Always wondered about that.

I was laughing the other day when I was listening to a Doors CD where Jim Morrison is ribbing the crowd about astrology and his final conclusion is, "I think it's bullshit!"

Anyway, this guy really HATES astrology in a very humorous way. I especially like t he last line in finer print: "1,692,464 planets were aligned when this article was written, affecting precisely dick."
 
 
kaylight1101
06 February 2008 @ 08:59 pm
I watched "The Hours" today. What an amazing movie and book. This is by the same author who wrote the book that was made into a movie, "A Home At The End Of The World."

The writer, Michael Cunningham, is gay and so he creates characters who struggle with mixed results to live unconventional lifestyles or those closeted away from the norm.

 "The Hours" is now one of my favorite movies with Meryl Streep, Julianne Moore, and Nicole Kidman. Kidman won a best actress award for her performance as Virginia Woolf. I could hardly tell it was her due to the makeup job they did on her. She is so amazing.

The movie follows three characters in different times in history - 1940's, 1950's, and the year 2000 or so.

One of the characters is dying of AIDS and everyone else but his gay female freind, who is just trying to throw a party for him, is dying in some other unique way and either finding a way to bear it or not.

What really struck me most about the book/movie, was how the author dealt with time and the interplay between the characters separated by time. The central theme of the story has to do with the moments, the hours, and the days that make up a person's life and how precious and painful it is  to see them slipping away, to remember the good in them, or to not be able to bear them any longer.

I think another theme of the movie illustrates the importance of not hiding from life or one's self. No matter what. Even if it means taking a hard road less traveled.

The movie really piqued my interest again in Virginia Woolf, whom I studied in my English Literature classes.  She suffered greatly from manic depressive illness which took her life in 1944. 

I think Cunningham is brilliant and I am inspired by him as well. I'm sure his characters are people or aspects of people he has known in real life. I often think of the characters and situations in my own life that I would like to write about as a means of capturing my own moments before they slip through my fingers and out of my memory.

Mostly, I've been thinking about how the act of writing is immortalizing with an infinite amount of contexts, histories, and readerly perspectives. I understand why some writers live to write and write to live.
 
 
kaylight1101
03 February 2008 @ 01:22 pm
I had a kind of  lucid and/or tactile dream last night.

I dreampt that someone gave me a hit of acid. At the same time, I was making and eating pot brownies. All of the sudden, the acid started to take effect and I realized I had eaten one too many brownies.  I went to try and throw them up as I knew I had gone over the edge and things would only get more out of control.  I started to hallucinate and things looked warped and out of character.

In another dream, I dreampt that a few people told me that when things go wrong, one should just keep walking for as long as possible. So I was trying to follow them but I was barefooted. I could feel the sidewalk hurting my feet. I tried to walk on the grass but it was full of other things that hurt my feet. I complained about this but they told me just keep walking.

So that is the first time I have ever felt pain in a dream. And that is the first time I have tripped in a dream. 
 
 
kaylight1101
01 February 2008 @ 01:40 pm
This is the best thought I've had in a while:

As long as I am an artist, it is bearable to be a tormented one. When I am no longer acting as an artist, I'm just a tormented soul, which is both tragic and boring. 
 
 
 
 

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